Ethnicity and Caring for a Disabled Child: The Case of Children with Sickle Cell or Thalassaemia

Abstract

Services for haemoglobinopathies have been a major site of struggles for the black communities, yet the social research literature on haemoglobinopathies remains patchy and fragmented. We provide an overview of the literature on sickle cell disorders and thalassaemia major in the broader context of debates on childhood disability and chronic illness, and on ethnicity, racism and health care.